| Patient organization |
Type of support and amount |
Caladrius
Rare Disease Organization, Latvia |
Financial support with translation - € 285. |
|
CLIMB
|
Educational grant to support physician and patient days and non branded promotional items for patient meetings. |
Danmarks
Bløderforening
(Danish Hemophilia Society) |
Financial support to the projects:
- "Dansk Bløder" Summer camp
- Participation to WHF
- The Annual Meeting of the Danish Hemophilia Society
In total 38 000 DKK.
|
| EURORDIS |
- Financial support through Eurordis Round Table of Companies (ERTC) membership
- Sponsorship activities during 5th European Conference on Rare Diseases 2010, Poland - € 2500
|
FEDER
Federacion Española de Enfermedades Raras |
Financial support of the annual awareness campaign on rare diseases - € 1 500.
|
| Federación Española de PKU y OTM |
Financial support of XV Congress of the federation - € 1 000. |
| Foreningen for blødere i Norge (Norwegian Hemophilia Society) |
Travel grant 20 000 NOK.
|
Förbundet Blödarsjuka i Sverige
(Swedish Hemophilia Society) |
- Main sponsor of the Arosenius Fund - SEK 250 000 for years 2009-2011
- Collaboration in Teenager projects.
|
|
HAE UK
|
Educational Grants and non branded promotional items for patient meetings. |
|
NEBATA
North of England Bone Marrow and Thalassaemia Society
|
Educational Grant to support NEBATA patient day. |
NORD
National Organization for Rare Disorders |
Unrestricted grant to Partners in Progress Gala - USD 15 000.
|
OSCAR Nederland
(Dutch Thalassaemia Society) |
Educational Grants, Travel grant to attend TIF meeting, Non branded promotional items for patient meetings. |
Polskie Stowarzyszenie Pomocy Chorym na Fenyloketonurie i Choroby Rzadkie “Ars Vivendi”
(Patients Association Group "Ars Vivendi") |
Financial support for
- Participation in 5th ECRD 2010 in Krakow, Poland - € 900
- Activities during Polish Conference on PKU and Rare Diseases - € 1 250
- Participation in 2nd Tyrosinemia Type 1 Symposium - € 1600
|
|
SAM e.V.
(Thalassämie), Hamburg
|
Unrestricted grant and support of annual patient meeting in 2010 with € 1000. |
|
Stowarzyszenie Pomocy Chorym na Miesaki “Sarcoma”
(Patients Association Group "Sarcoma”)
|
Financial support for
- Participation in 5th ECRD 2010 in Krakow, Poland - € 620 EUR)
- Organization of two events - € 1 400
|
|
Suomen Hemofiliayhdistys ry
(Finnish Hemophilia Society)
|
Travel grants and financial support for congress/meeting arrangement.
|
|
U.K. Thalassaemia Society
|
Educational grant to support UKTS Physician and patient day, travel grant to attend TIF meeting and non branded promotional items for patient meetings. |
|
VfASS
Verein für angeborene seltene Stoffwechselerkrankungen
|
Financial support for participant to attend an event for patients in 2010, € 125.
|
VKS
(Dutch Metabolic Society) |
Educational Grants and non branded promotional items for patient meetings. |